On this page:
Note: "(on site)" means this information is available on this website through the
Links and More Information
This is a group of experts who are collaborating to better understand and treat these
diseases. Information about various autonomic disorders and opportunities to participate
in new research studies are available at this website. It also includes a registry to join
and be notified about future research studies.
Mission - Autonomic disorders cause loss of regulation of the heart, blood vessels,
stomach, bowel and bladder. Affected patients may have palpitations or lose consciousness,
and some have a rapidly fatal course. We hope to join with patient support groups to
harness the knowledge and energies of physicians and investigators in the major centers
where these patients are cared for, so that they can discover ways to treat and to cure
these diseases. The greater the collaboration between doctors and patients, the more we can
learn about these disorders. This important first step is necessary if we are ever to find
genuinely effective and curative treatments.
Copyright © 2014, Vanderbilt Autonomic Dysfunction Center
Center For Hypotension - Julian M. Stewart MD, PhD, Director
Our purpose at the Center for Pediatric Hypotension is to investigate, evaluate, and
treat adolescents and young adults with orthostatic intolerance including those with
orthostatic tachycardia, syncope and other forms of chronic orthostatic intolerance
including the chronic fatigue syndrome.
Copyright © 2014, Center for Pediatric Hypotension
The Postural Tachycardia Syndrome (POTS): pathophysiology, diagnosis & management by Dr. Satish R. Raj
This article gives a good overview of the different types of Postural Orthostatic
Tachycardia Syndrome (POTS) and potential treatments for each type. It's really important
to work closely with a knowledgeable doctor on this.
Viral illness may spur ‘standing up’ disorder Dr. Raj is a co-author of this research study.
Wow; what an interesting development in POTS medical research!
POTS Research Highlights at Vanderbilt Autonomic Dysfunction Center
Our Mission: To raise awareness of autonomic nervous system dysfunction and to promote dysautonomia education, support and networking.
Be sure to look through the Physician List by country and state.
Copyright © 2014, Dysautonomia Information Network
I was invited to write an essay for the Dysautonomia Information Network newsletter in Summer 2008.
ME/CFS Guidelines: Management Guidelines for General
Practitioners (on site)
A taskforce of South Australian clinicians and others with experience in ME/CFS have
developed this more succinct set of guidelines for GPs and other medical practitioners. Its
focus is on the basic diagnosis and management of this condition in the community or
primary care setting.
No Other Illness Like This One: Dr. Bell Finds Dramatic Abnormalities In CFIDS - Part 1 and Part 2 (on site) by Joan S. Livingston
This article is about low blood volume and Orthostatic Intolerance (OI) in Chronic Fatigue Syndrome (CFS) and was originally posted at chronicfatigue.about.com in July 2000.
Working to conquer chronic fatigue and immune dysfunction syndrome.
Copyright © 2006, The CFIDS Association of America, Inc.
Also, see these pages (on site) Orthostatic Intolerance Test for more explanation on the simple testing procedure, Orthostatic Intolerance Test Results for more details about the 5 types of Orthostatic Intolerance, and Faces of CFS for another example of the OI test and using compression pants.
More resources, articles, and books about Chronic Fatigue Syndrome (CFS) by David S. Bell, MD, FAAP
The Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia, and Orthostatic Intolerance
In the Articles section, this site includes archives of some articles of The Lyndonville News newsletter, many of which were written by David S. Bell, MD, FAAP.
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I included my experience with this on the Update page. I thought you might also be interested in additional information about Vertical Heterophoria to share with your doctors, too.
Vertical Heterophoria: New Discoveries Enable Treatment of Many Associated Disorders (on site)
This article has a thorough description of the testing and symptoms of Vertical Heterophoria.
Posted with permission from the authors and permission pending from the publisher.
Vision Specialists of Michigan
From the homepage - "The doctors at Vision Specialists of Michigan have made pioneering discoveries into the diagnosis and treatment of Vertical Heterophoria and Superior Oblique Palsy, two uncommonly recognized and poorly understood eye misalignment conditions. Those who suffer from Vertical Heterophoria or Superior Oblique Palsy tend to have a small amount of vertical eye misalignment, which the brain corrects by directing the eye muscles to properly reposition the eyes. However, using the eye muscles in this manner overworks them and they become strained and fatigued, causing the many symptoms of Vertical Heterophoria and Superior Oblique Palsy. The severity and number of symptoms vary from person to person – some people are much more affected than others. Traumatic Brain Injury (TBI) has been known to cause these symptoms.
Most patients experience a marked reduction in their symptoms with precise prismatic correction. The doctors at Vision Specialists of Michigan have developed a very detailed and specialized NeuroVisual Evaluation, which allows for the accurate diagnosis and treatment of Vertical Heterophoria and Superior Oblique Palsy. Using realigning prismatic spectacle lenses, the strain and fatigue within the visual system is reduced or eliminated. Patients notice significant improvement in their symptoms during their first office visit. Improvement continues over the course of several visits as the prismatic prescription is fine-tuned and customized for the individual.
A specialized Questionnaire has been developed by the researchers at Vision Specialists of Michigan to identify those who might be suffering from Vertical Heterophoria or Superior Oblique Palsy."
Vertical Heterophoria Questionnaire - http://vsofm.com/patients/vertical-heterophoria-questionnaire/
Dr. Debby Feinberg and her husband, Dr. Mark Rosner, have just finished a book - If The Walls of My Exam Room Could Talk - about patients' experiences with Vertical Heterophoria.
Copyright © 2014, Vision Specialists of Michigan
These are ministries that have helped me or I have gotten to support in some way.
Would you like to know my God? He has helped me through all of this. Pray this prayer. - http://www.kcm.org/real-help/resources/prayer-salvation-and-baptism-the-holy-spirit
Kenneth Copeland Ministries - www.kcm.org
Joyce Meyer Ministries - www.joycemeyer.org
Mercy Ministries is a non-profit organization for young women who face life-controlling
issues. We provide residential programs free of charge designed to address the whole
person: spiritual, physical and emotional. Our non-conventional approach to the underlying
issues changes more than behavior; the Mercy Ministries program changes hearts and stops
Copyright © 2005, Mercy Ministries of America
Project Linus is a 100% volunteer non-profit organization with a two-fold mission:
Copyright © 2006, Project Linus
Search Some of My Favorite Websites about Using Credit-by-Exam to Earn a College DegreeNote: These search results will open in a new window.
Be sure to shop here for Study Guides, too.
My mom does a lot of reading and likes to use this website to trade her books. It is called PaperBackSwap.com. They also have hardcover books, textbooks, and audiobooks, plus CDs and DVDs (on a separate website).
My mom can get a pre-printed postage label from her computer, so she does not have to go to the post office to mail her books, and she re-uses the packaging that her books come in. We especially like PBS because we know the books and DVDs are going to people, who would like to have them. (We get attached to our books and DVDs - even the ones we do not want to keep anymore! We found out the library actually throws away some that have been donated and that really bothers my mom!! There are too many people in this world who do not have anything to read and most of the books she was donating were Christian books!)
My mom has belonged to PBS for several years, and she has received many more books than she has given. If she does not have any (or enough) credits from trading her books, she can buy credits for $3.95 per book (or $2.00 in the book bazaar forum at PBS, where there are a lot of book deals, too). That is a good price since Amazon’s shipping is $3.99. (She still uses Amazon, if there is a long waiting list for a book she wants soon.) When she hears that a newly published book she wants is coming out, she gets on the waiting list (wish list) right away. She has gotten “brand new”, hardcover books that have been published less than a month before. Someone bought it, read it once, and gave it away. She has gotten a few “not-so-nice” books, but not many. (My mom does the reading and I like to help her with the trading; I love this game!)
As of February 2015, PBS added 2 membership levels that have an annual fee and 1 membership level that has a 49cent transaction fee for book requests.
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